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Paediatric Palliative Care - describing patient needs and the experiences of caregivers and health care workers in a Cape Town Paediatric Intermediate Care Facility
Aim: The study describes the population (and care needs) of children admitted to the facility, the experiences of their primary caregivers and the health care workers caring for them. Methodology: This was a descriptive study that utilised elements of both prospective and crosssectional design. The...
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| Format: | Thesis |
| Language: | English |
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Department of Medicine
2021
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| _version_ | 1867613851780907008 |
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| access_status_str | Open Access |
| author | Daniels, Alexandra |
| author2 | Meiring, Michelle |
| author_browse | Daniels, Alexandra Meiring, Michelle |
| author_facet | Meiring, Michelle Daniels, Alexandra |
| author_sort | Daniels, Alexandra |
| collection | Thesis |
| description | Aim: The study describes the population (and care needs) of children admitted to the facility, the experiences of their primary caregivers and the health care workers caring for them. Methodology: This was a descriptive study that utilised elements of both prospective and crosssectional design. The health records of 25 patients were reviewed and matched caregivers partook in a three-part questionnaire. Focus group discussions were conducted with 15 health care workers at a single point during the study. Results: The majority (48%) of patients were referred to the facility for transitional care, the average length of stay was calculated at 97 days and pain was identified as the most prevalent symptom. Despite significant degrees of worry, most primary caregivers derived emotional strength and spiritual meaning from the experience of caring for their child. Health care workers valued access to training, appropriate resources, and support to meet the challenge of caring for children and families with specific care needs. Conclusion/Recommendations: These results conclude that children living with LL or LTC's and their families have complex holistic care needs that require a comprehensive approach. In order to best meet these needs, at ICF level, health care workers need to be assured access to a range of skills, resources and support. |
| format | Thesis |
| id | oai:open.uct.ac.za:11427/33603 |
| institution | University of Cape Town (South Africa) |
| language | eng |
| last_indexed | 2026-06-10T12:42:43.408Z |
| license_str | Not specified — see source repository |
| provenance_str_mv | Harvested via OAI-PMH from UCTD — University of Cape Town Open Access Repository |
| publishDate | 2021 |
| publishDateRange | 2021 |
| publishDateSort | 2021 |
| publisher | Department of Medicine |
| publisherStr | Department of Medicine |
| record_format | dspace |
| source_str | UCTD — University of Cape Town Open Access Repository |
| spelling | oai:open.uct.ac.za:11427/33603 Paediatric Palliative Care - describing patient needs and the experiences of caregivers and health care workers in a Cape Town Paediatric Intermediate Care Facility Daniels, Alexandra Meiring, Michelle Ganca, Linda Gwyther, Liz paediatric palliative care Aim: The study describes the population (and care needs) of children admitted to the facility, the experiences of their primary caregivers and the health care workers caring for them. Methodology: This was a descriptive study that utilised elements of both prospective and crosssectional design. The health records of 25 patients were reviewed and matched caregivers partook in a three-part questionnaire. Focus group discussions were conducted with 15 health care workers at a single point during the study. Results: The majority (48%) of patients were referred to the facility for transitional care, the average length of stay was calculated at 97 days and pain was identified as the most prevalent symptom. Despite significant degrees of worry, most primary caregivers derived emotional strength and spiritual meaning from the experience of caring for their child. Health care workers valued access to training, appropriate resources, and support to meet the challenge of caring for children and families with specific care needs. Conclusion/Recommendations: These results conclude that children living with LL or LTC's and their families have complex holistic care needs that require a comprehensive approach. In order to best meet these needs, at ICF level, health care workers need to be assured access to a range of skills, resources and support. 2021-07-12T18:07:17Z 2021-07-12T18:07:17Z 2021 2021-07-12T18:02:25Z Master Thesis Masters MPhil http://hdl.handle.net/11427/33603 eng application/pdf Department of Medicine Faculty of Health Sciences |
| spellingShingle | paediatric palliative care Daniels, Alexandra Paediatric Palliative Care - describing patient needs and the experiences of caregivers and health care workers in a Cape Town Paediatric Intermediate Care Facility |
| thesis_degree_str | Master's |
| title | Paediatric Palliative Care - describing patient needs and the experiences of caregivers and health care workers in a Cape Town Paediatric Intermediate Care Facility |
| title_full | Paediatric Palliative Care - describing patient needs and the experiences of caregivers and health care workers in a Cape Town Paediatric Intermediate Care Facility |
| title_fullStr | Paediatric Palliative Care - describing patient needs and the experiences of caregivers and health care workers in a Cape Town Paediatric Intermediate Care Facility |
| title_full_unstemmed | Paediatric Palliative Care - describing patient needs and the experiences of caregivers and health care workers in a Cape Town Paediatric Intermediate Care Facility |
| title_short | Paediatric Palliative Care - describing patient needs and the experiences of caregivers and health care workers in a Cape Town Paediatric Intermediate Care Facility |
| title_sort | paediatric palliative care describing patient needs and the experiences of caregivers and health care workers in a cape town paediatric intermediate care facility |
| topic | paediatric palliative care |
| url | http://hdl.handle.net/11427/33603 |
| work_keys_str_mv | AT danielsalexandra paediatricpalliativecaredescribingpatientneedsandtheexperiencesofcaregiversandhealthcareworkersinacapetownpaediatricintermediatecarefacility |