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For Me, Quality of Life Is When I Get Through the Day Without Thinking: I Won't Make It: A Participatory Qualitative Study of Health‐Related Quality of Life in Rare Liver Diseases
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| Published in: | Health Expectations |
|---|---|
| Format: | Online Article RSS Article |
| Published: |
2026
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| Subjects: | |
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| _version_ | 1868553954216902656 |
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| collection | WordPress RSS FRELIP Feed Integration |
| container_title | Health Expectations |
| description | |
| discipline_display | Health Facilities and Administration |
| discipline_facet | Health Facilities and Administration |
| format | Online Article RSS Article |
| genre | Journal Article |
| id | rss_article:91811 |
| institution | FRELIP |
| journal_source_facet | Health Expectations |
| last_indexed | 2026-06-20T21:45:12.453Z |
| publishDate | 2026 |
| publishDateSort | 2026 |
| record_format | rss_article |
| spellingShingle | For Me, Quality of Life Is When I Get Through the Day Without Thinking: I Won't Make It: A Participatory Qualitative Study of Health‐Related Quality of Life in Rare Liver Diseases Health Facilities and Administration General Health Facilities and Administration |
| sub_discipline_display | General |
| sub_discipline_facet | General |
| subject_display | Health Facilities and Administration General Health Facilities and Administration |
| subject_facet | Health Facilities and Administration General Health Facilities and Administration |
| title | For Me, Quality of Life Is When I Get Through the Day Without Thinking: I Won't Make It: A Participatory Qualitative Study of Health‐Related Quality of Life in Rare Liver Diseases |
| title_alt | Para mí, la calidad de vida es cuando paso el día sin pensar: no lo lograré: un estudio cualitativo participativo de la calidad de vida relacionada con la salud en enfermedades hepáticas raras Pour moi, la qualité de vie, c'est quand je traverse la journée sans penser : je n'y arriverai pas : une étude qualitative participative de la qualité de vie liée à la santé dans les maladies hépatiques rares Para Mim, Qualidade de Vida é Quando Passo o Dia Sem Pensar: Não Vou Conseguir: Um Estudo Qualitativo Participativo da Qualidade de Vida Relacionada à Saúde em Doenças Hepáticas Raras |
| title_auth | For Me, Quality of Life Is When I Get Through the Day Without Thinking: I Won't Make It: A Participatory Qualitative Study of Health‐Related Quality of Life in Rare Liver Diseases |
| title_es_txt | Para mí, la calidad de vida es cuando paso el día sin pensar: no lo lograré: un estudio cualitativo participativo de la calidad de vida relacionada con la salud en enfermedades hepáticas raras |
| title_fr_txt | Pour moi, la qualité de vie, c'est quand je traverse la journée sans penser : je n'y arriverai pas : une étude qualitative participative de la qualité de vie liée à la santé dans les maladies hépatiques rares |
| title_full | For Me, Quality of Life Is When I Get Through the Day Without Thinking: I Won't Make It: A Participatory Qualitative Study of Health‐Related Quality of Life in Rare Liver Diseases |
| title_fullStr | For Me, Quality of Life Is When I Get Through the Day Without Thinking: I Won't Make It: A Participatory Qualitative Study of Health‐Related Quality of Life in Rare Liver Diseases |
| title_full_unstemmed | For Me, Quality of Life Is When I Get Through the Day Without Thinking: I Won't Make It: A Participatory Qualitative Study of Health‐Related Quality of Life in Rare Liver Diseases |
| title_pt_txt | Para Mim, Qualidade de Vida é Quando Passo o Dia Sem Pensar: Não Vou Conseguir: Um Estudo Qualitativo Participativo da Qualidade de Vida Relacionada à Saúde em Doenças Hepáticas Raras |
| title_short | For Me, Quality of Life Is When I Get Through the Day Without Thinking: I Won't Make It: A Participatory Qualitative Study of Health‐Related Quality of Life in Rare Liver Diseases |
| title_sort | for me, quality of life is when i get through the day without thinking: i won't make it: a participatory qualitative study of health‐related quality of life in rare liver diseases |
| topic | Health Facilities and Administration General Health Facilities and Administration |
| url | https://onlinelibrary.wiley.com/doi/10.1111/hex.70721?af=R |